IPRS logo International Palindromic Rheumatism Society IPRS logo

 

 

 

 

è What is "PR"

è Symptoms And Diagnosis 

è Photos Of My PR

è Medication and Treatment 

è Prognosis For PR

è PR FAQ

è It Makes PR Worse...  It Makes PR Better...

è PR Stories

è Impact of The IPRS

è PR Forum

è PR Articles

è How You Can Help The IPRS 

è IPRS Publications

è Useful Links

è About The Volunteers

è Contact Us By Email 

è Disclaimer and Terms Of Conditions

 
 

 

Palindromic Rheumatism

Hello and welcome to the IPRS website. This website is for people interested in or suffering from Palindromic Rheumatism. I am Paul the founder of the IPRS and I have had PR for over 18 years now. The IPRS has grown so much in such a small time that I couldn't manage to run this site on my own and have a great bunch of volunteers that work very hard for the IPRS.  I hope this website, the information and pictures help and inform you.

 

 Information

  The International Palindromic Rheumatism Society is a privately owned voluntary group made up of people who know the most about PR, that is the people who have PR. The aim of the The IPRS is to reach and bring together as many people affected by PR, to help inform, give advice and offer emotional support. The goal is to have every Dr aware of PR and every suffer of PR access to an online support and advice group. We hope to have all the information you will ever need to know about PR. As the IPRS is privately funded we welcome donations.  
 

Site Highlights

 

The "New Quick Links" at the top of the page which should make it easier to visit your most frequently visited pages.

The only web site to have PR Photos.

Join The IPRS Forum -  Speak to others that understand what you are going through.

Read the current IPRS Newsletter and the PR Information Leaflet

Check out 'Medication and Treatment' to find out the latest information on the medication you are using

Read our members own PR Stories to find out how PR affects them.

 
 

Coming Soon

 

More Forum Additions

Blog Area Additions

More Members PR Stories and Photos.

A PR Survey

Medication Developments

Reference Links.

 

We continue to work on, and update this website whenever we can. We hope to continue to include everything you will ever need to know regarding PR. If you come across any news, or articles regarding PR and PR Medication that isn't included on this site etc please let us know. 

Also We need you to get involved so we can have more example photos and stories on how PR affects you. Particularly if you work and look after a family or have an interesting or unusual situation.

 

 

 
   
     
 

In
Memory
Of

 
 

Latest News

 

2nd June 2008 - Forum Re-opened after recent problems. The IPRS would like to apologise to their forum readers for any inconvenience caused.

26th May 2008 - Updated - Volunteers Page.

22nd May 2008 - Updated - Meds + Treatment Page.

22nd May 2008 - Updated - Impact of The IPRS page.

12th May 2008 - Updated - Impact of The IPRS page.

12th May 2008 - New - Article on the decision by NICE on Anti TNF Therapy.

18th April 2008 - New - Deborah's PR Story and Photos.

18th April 2008 - Updated - Meds + Treatment Page.

12th Feb 2008 - Updated - Meds + Treatment Page.

17th Nov 2007 - As its our 2nd year anniversary this year. Click the link to celebrate our 2nd year anniversary with us IPRS Anniversary  

17th Nov 2007 - Updated - Impact of The IPRS page.

23rd Aug 2007 - In Memoriam page added. The IPRS would like to tell Rob's family that you are still in our thoughts and prayers.

30th July 2007 - QVC UK comes to the IPRS. For those that have requested a shopping link to QVC UK. Remember, when you shop via the link The IPRS gets a few pence commission.

26th July 2007 - Updated - Volunteers Page, A New DLA Guide added to Karin's introduction.

26th July 2007 - New - Mike's PR Story and Photos.

26th July 2007 - Updated - Impact of The IPRS page.

25th May 2007 - New A Posture Notes Leaflet and a Diet and Arthritis Leaflet added to IPRS Publications. More leaflets to be add.

25th May 2007 - Updated - Impact of The IPRS page.

23rd May 2007 - New Live Chat, Forum Chat Room added. Visit our new Chat Room Bot and have a laugh.

23rd May 2007 - Forum Gallery improved, which now has a slideshow and better thumbnails.

18th Apr 2007 - Website Updated - Pages are being improved, updated from today.

18th Apr 2007 - Symptoms + Diagnosis Page Updated - Tips on how to get a quicker diagnosis added to the bottom of the page.

28th Mar 2007 - Forum/ Blog Space, Back Online. Hopefully it will stay that way. Sorry for the inconvenience and thanks for your patience and support.

27th Mar 2007 - We would like to apologise to those that still can't log on to the forum and Blog Space. We are still waiting for the Forum/Blog Space to be back online but we our unable to do anything else at this time as it is out of our hands. The server company reset the forum on Sunday and said it would be back online over the next 24 - 48 hours. I would like to ask you not to send us anymore emails regarding logging on to the forum etc as these emails are using up our valuable resources and preventing us from chasing up the companies involved as well as answering more important emails etc.    

16th Mar 2007 - Forum Moved!  Now using the new site: www.palindromic.org/forum. Please update your favourites. More info on the status page.

4th Mar 2007 - Updated Impact of The IPRS page.

3rd Mar 2007 -  New Status page. Check for current problems with the either the forum or this website.

23rd Jan 2007 -  Updated Impact of The IPRS page.

17th Jan 2007 - Updated PR Stories. Karin's Story and New Photos added.

1st Jan 2007 - The IPRS would like to wish all its members and visitors to this website a Happy New Year.

30th Dec 2006 - The IPRS Forum celebrates its 1st Birthday.

19th Dec 2006 - New 'Podcast' (Audio Recording) added to 'What is PR' page.

15th Dec 2006 - New  The IPRS 'Blog Space' added in to the Forum.

Archived News...

 
 

Forum + Site Status

 

To check for current outages & issues with the forum or this website click here
 

 
 

Donations

 

To help maintain this website, forum & leaflets
All donations gratefully received:-
 Click the Paypal button below to make a secure payment online.

 (No Paypal Account Needed - Just pay by card)

 

 Thanks

 

Since we started this site we have received hundreds of messages thanking The IPRS and congratulating us on a fantastic site. These messages mean a lot to the IPRS. This site is receiving thousands of hits a week now and with new forum members joining every day. We try to reply to each and every message however with PR and a limited amount of resources we may not get round to replying straight away. We tend to reply first to the urgent emails and sometimes don't get around to thanking everyone. We would like to take this opportunity to thank each and everyone of you that has thanked The IPRS via email.

We also thank all of you that have supported and enjoyed this site, and hope that you will continue to in the future.

 

 

   

 

Use the Links below to shop online and earn a few pennies commission for the IPRS at no extra cost to you.

UK Sites

  H+B   Argos, Play.Com, Tesco Direct, Tesco (Groceries),
QVC uk Espirit, Kelkoo, CDWow, BlahDVD John Lewis,
HMV, 1and1 Amazon, Uswitch, PriceRunner, LittlewoodsDirect,
    Healthy Direct
Thorntons
chocolates
WeightWatchers,
  Woolworths

         For more UK sites and sites abroad go to the
Palindromic Rheumatoid Arthritis, Palindromic Arthritis palendromic rhumatism

 

 

Founded 2005.