Palindromic Rheumatism IPRS

It was on the news in the UK recently that a charity based in the UK had been used in part of a scam across America and Canada. Unbeknown to the Charity, letters had been posted out across America asking for money for the charity even though the money would have ended up going to the scammers and not the charity.

It is a sad world in which we live where there are such people prepared to do such a thing. I believe we had been approached this year by someone who was trying to get personal information about me to possibly scam myself. They were asking for bank details etc so they could make a donation to the IPRS. I did not, nor ever would, give out that kind of information, nor should you if you are ever asked.

The IPRS has not, or will never contact anyone for money in this way. You will never receive a letter or email from The IPRS or any of its associates asking for money. If you receive any such letter supposedly from the IPRS please contact me at iprs@f2s.com and give the letter or email to your local police department. We try to do all we can to protect ourselves against spammers on the forum etc but they sometimes managed to get through at times so it is better to be aware of what is going on out there.

The IPRS, December 2006.

Palindromic Rheumatism

Prognosis For PR

When I first wrote this page it was claimed by the medical world that:-

"PR is usually divided into thirds, 1/3rd will have PR in one or more joints and this will reoccur from time to time and then burn it self out.

Another 1/3rd will have PR in one or more joints and continue to have "Flare Ups" throughout their life (possibly going into remission from time to time, maybe for long periods)

The Last 1/3rd will go on to another form of arthritis usually "RA" (but can still show traits of PR).

However they are now saying that 50% of PR cases will go onto RA. They don't say how long it takes to develop or who will go on to develop RA and presence of the rheumatoid factor in the blood is no indicator, I guess we will just have to wait and see. I will add any further information as soon as we know any additional information.

Medication Used for RA has shown to work with PR however this can change and a number of DMARDS can be used at once to have the same affect.

Some People with PR say they have found relief/remission by changing their diet/lifestyle or using alternative forms of medicine including acupuncture or massage although this only seems to be the case for a less aggressive period of PR or the minority of PR Suffers.

Currently, the cause, prognosis and optimal treatment of palindromic rheumatism are poorly understood. Systemic manifestations do not occur. Although hundreds of attacks may take place over a period of years, there is no permanent articular damage. Most experts view palindromic rheumatism as a variant of rheumatoid arthritis, but its course is highly variable. Roughly one-third of people with palindromic rheumatism continue with brief episodes of arthritis, one-third to one-half go on to the more constant and chronic joint disease of rheumatoid arthritis, and for a fortunate few (15 percent in one study), the disease seems to resolve on its own.

Back to PR Main Page

Founded 2005.