IPRS logo International Palindromic Rheumatism Society IPRS logo

 

 

 

 

è What is "PR"

è Symptoms And Diagnosis 

è Photos Of My PR

è Medication and Treatment 

è Prognosis For PR

è PR FAQ

è It Makes PR Worse...  It Makes PR Better...

è PR Stories

è Impact of The IPRS

è PR Forum

è PR Articles

è How You Can Help The IPRS 

è IPRS Publications

è Helpful Guides

è DLA (UK) Guides

è Useful Links

è About The Volunteers

è Contact Us By Email 

è Disclaimer and Terms Of Conditions

 
 

 

Palindromic Rheumatism

Hello and welcome to the IPRS website. This website is for people interested in or suffering from Palindromic Rheumatism. The IPRS has grown with so many members in such a small time as it is the only place offering a place to find advice, help and support for people with PR. The IPRS was created by me Paul, a sufferer of PR who has had PR for over 20 years. We also have a great bunch of volunteers that work very hard for the IPRS themselves having PR or now RA. So it is run by people who understand what it is like to live with PR. I hope this website, the information and pictures help and inform you. We have been going for 5 years this year and we are glad that we have helped, supported and informed so many. We are even inspiring others to create there own websites and hopefully spreading awareness.

 

 Information

  The International Palindromic Rheumatism Society is a privately owned voluntary group made up of people who know the most about PR, that is the people who have PR. The aim of the The IPRS is to reach and bring together as many people affected by PR, to help inform, give advice and offer a place of support. The goal is to have every Dr aware of PR and every suffer of PR access to an online support and advice group. We hope to have all the information you will ever need to know about PR. As the IPRS is privately funded we welcome donations. We are also glad others have been inspired to start their own website and spread the awareness of PR. However if you do copy our information for your own website please ask first.  
 

Site Highlights

 

The "New Quick Links" at the top of the page which should make it easier to visit your most frequently visited pages.

The only web site to have PR Photos.

Join The IPRS Forum -  Speak to others that understand what you are going through.

Read the current IPRS Newsletter and the PR Information Leaflet

Check out 'Medication and Treatment' to find out the latest information on the medication you are using

Read our members own PR Stories to find out how PR affects them.

 
 

Coming Soon

 

More Forum Additions

Blog Area Additions

More Members PR Stories and Photos.

A PR Survey

Medication Developments

Reference Links.

 

We continue to work on, and update this website whenever we can. We hope to continue to include everything you will ever need to know regarding PR. If you come across any news, or articles regarding PR and PR Medication that isn't included on this site etc please let us know. 

Also We need you to get involved so we can have more example photos and stories on how PR affects you. Particularly if you work and look after a family or have an interesting or unusual situation.

 


Helping to prevent suicides
and for someone to talk to

 

 
   
     
 

In
Memory
Of

 
 

Latest News

 

6th Feb 2010 - Forum and blogs back on line. We apologise for the length of downtime, but it was a serious issue and was out of control

1st Feb 2010 - Problems with the Forum. Our internet provider is having problems, updates etc We hope to be up and running again ASAP. In the meantime join us on Facebook. see link below.

25th Jan 2010 - Forum Updated see status page.

09th Jan 2010 - Just an explanation for those that are not aware of ASIST - The I in ASIST Stands for Intervention and is an organisation that helps people who are feeling depressed and suicidal and certainly does not assist people to commit suicide. The ASIST Logo was added to our website to offer help to those members depressed or affected by suicide as Karin (one of our Moderators) has had training to help to talk to people who may need someone to talk to. Just to make it clear The IPRS does not approve of or promote assisted suicide in anyway nor do we associate with organisations that do.

14th Dec 09 - Updated - Volunteers Page, Karin is now a trained ASIST person (Applied Suicide Interventions Skills).

1st Nov 09 - Forum Back On Line. The New Look Forum and New Look Blogs are now on line, with on going updates.

1st Nov 09 - Updated - Paul's Story.

31st Oct 09 - Forum Off Line whilst the 'New Forum' is being up loaded. The New Look Forum will be on line ASAP.

29th Sept 09 - Forum Back + working.

29th Sept 09 - Forum Down. We are looking into the reason why and will get it back up and running ASAP. Apologies for any inconvenience caused.

24th Sept 09 - New - Cynthia's Story and Photos.

9th July 2009 - New - Helpful Guides added.

20th June 2009 - Updated - Impact of The IPRS page.

9th April 2009 - New page of helpful guides for information on and completing DLA (UK) Forms.

9th April 2009 - Updated - Impact of The IPRS page.

7th March 2009 - 'Shop Search' added - try it here.

28th Jan 2009 - New - Article on MRI and PR.

26th Jan 2009 - Updated - FAQ page.

29th Dec 2008 - The IPRS would like to wish All their members a Happy 3rd Year Anniversary and A Happy 3rd Birthday for the Forum tomorrow 30/12/08.

1st Dec 2008 - Updated - Impact of The IPRS page.

2nd June 2008 - Forum Re-opened after recent problems. The IPRS would like to apologise to their forum readers for any inconvenience caused.

26th May 2008 - Updated - Volunteers Page.

22nd May 2008 - Updated - Meds + Treatment Page.

22nd May 2008 - Updated - Impact of The IPRS page.

12th May 2008 - Updated - Impact of The IPRS page.

12th May 2008 - New - Article on the decision by NICE on Anti TNF Therapy.

18th April 2008 - New - Deborah's PR Story and Photos.

18th April 2008 - Updated - Meds + Treatment Page.

12th Feb 2008 - Updated - Meds + Treatment Page.

17th Nov 2007 - As its our 2nd year anniversary this year. Click the link to celebrate our 2nd year anniversary with us IPRS Anniversary  

17th Nov 2007 - Updated - Impact of The IPRS page.

23rd Aug 2007 - In Memoriam page added. The IPRS would like to tell Rob's family that you are still in our thoughts and prayers.

30th July 2007 - QVC UK comes to the IPRS. For those that have requested a shopping link to QVC UK. Remember, when you shop via the link The IPRS gets a few pence commission.

26th July 2007 - Updated - Volunteers Page, A New DLA Guide added to Karin's introduction.

26th July 2007 - New - Mike's PR Story and Photos.

26th July 2007 - Updated - Impact of The IPRS page.

25th May 2007 - New A Posture Notes Leaflet and a Diet and Arthritis Leaflet added to IPRS Publications. More leaflets to be add.

25th May 2007 - Updated - Impact of The IPRS page.

23rd May 2007 - New Live Chat, Forum Chat Room added. Visit our new Chat Room Bot and have a laugh.

23rd May 2007 - Forum Gallery improved, which now has a slideshow and better thumbnails.

18th Apr 2007 - Website Updated - Pages are being improved, updated from today.

18th Apr 2007 - Symptoms + Diagnosis Page Updated - Tips on how to get a quicker diagnosis added to the bottom of the page.

28th Mar 2007 - Forum/ Blog Space, Back Online. Hopefully it will stay that way. Sorry for the inconvenience and thanks for your patience and support.

30th Dec 2006 - The IPRS Forum celebrates its 1st Birthday.

19th Dec 2006 - New 'Podcast' (Audio Recording) added to 'What is PR' page.

15th Dec 2006 - New  The IPRS 'Blog Space' added in to the Forum.

Archived News...

 
 

Forum + Site Status

 

To check for current outages & issues with the forum or this website click here
 

 
 

Donations

 

To help maintain this website, forum & leaflets
All donations gratefully received:-
 Click the Paypal button below to make a secure payment online.

 (No Paypal Account Needed - Just pay by card)

 


 Thanks

 

Since we started this site we have received hundreds of messages thanking The IPRS and congratulating us on a fantastic site. These messages mean a lot to the IPRS. This site is receiving thousands of hits a week now and with new forum members joining every day. We try to reply to each and every message however with PR and a limited amount of resources we may not get round to replying straight away. We tend to reply first to the urgent emails and sometimes don't get around to thanking everyone. We would like to take this opportunity to thank each and everyone of you that has thanked The IPRS via email.

We also thank all of you that have supported and enjoyed this site, and hope that you will continue to in the future.

 

 

   

 

 

Use the Links below to shop online and earn a few pennies commission for the IPRS at no extra cost to you.

UK Sites

Find the cheapest prices with the IPRS Shop Search
Boots Zavvi The Hut Tooled Up Ideal World Screwfix Direct
Currys Dixons Wickes Focus DIY Micro Direct mySupermarket.co.uk
  H+B   Argos, Play.Com, Tesco Direct, Tesco (Groceries),
QVC uk Espirit, Kelkoo, CDWow, PriceRunner, Healthy Direct
  1and1 Amazon, HMV,   WeightWatchers,
 

 

Thorntons
chocolates
 

         For more UK sites and sites abroad go to the
Palindromic Rheumatoid Arthritis, Palindromic Arthritis palendromic rhumatism

 

Founded 2005.